<p style="text-align: left; ">Getting a chance to work with this family was a special treat for me. It isn't often I find the time to give to my community but because of <a target="_blank" href="http://inspirationthroughart.org/">Inspiration Through Art</a> I was teamed up with this family to provide heartfelt images. For me, they were wonderful memories of a sweet family in our community that has fought a battle no family wants to have to bare. That day I met a mother with such devotion and grace that I was truly humbled to be a part of this experience. Preston was an absolute sweetie and joy to photograph. His smile and dimples just melt the soul.&nbsp;</p>
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<p style="text-align: left; "><em>&quot;Preston was a full term baby, weighing 8 pounds 6 ounces, right after delivery his legs started to tremor, all the doctors thought that his muscles had not fully developed. At three months old, while giving Preston a bath he went into a full Grand Mal seizure. From then on out it has been a constant strugle for Preston. He can have a hundred plus seizures a day, he has has different types of seizures as well, some he has outgrown. The past nine years Preston has been in and out of the hospital dealing with seizures, illnesses, running tests to try to figure out what type of seizure disorder he had. On April 12, 2007 we finally got a positive test result for Dravet's Syndrome, also known as severe Myoclonic Epilepsy of Infancy ( SMEI). It is a rare disorder caused by a genetic mutation in a protein that regulates electrical activity in the brain. There is no cure, and he will never outgrow his seizures. Preston is nine but has a mind of a two year old. He gets OT, PT, and ST every week as well as weekly treatments of IVIG at unc hospital. Preston takes a cocktail of five siezure medicines twice a day, he also has a port and a vagus nerve stimulator. As hard as Preston's journey has been, he is an amazing fighter, a loving and compasionate child, a true gift from God!!&quot;</em></p>
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